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Patient and Caregiver Use of Patient Portal Features [Survey research or cross-sectional study]

Annals of Family Medicine

Context: Patient portals (PPs) are online healthcare platforms enabling patients access their electronic health records and offering different features to help patients manage their care such as viewing and entering health information, and permitting asynchronous communication between patients and their providers.

Patients 130
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Why do patient/caregiver partners feel like outsiders ? The research workplace culture as a deterrent to true partnership. [Patient engagement]

Annals of Family Medicine

Context: The Patient Advisors Network (PAN), was asked by the Canadian Institute for Health Research (CIHR) to contribute insights from the unique perspective of patient and caregiver partners to the Strategy for Patient-Oriented Research (SPOR) Refresh process.

Patients 130
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Patient experience with Social Prescribing Program in Ontario, Canada [Social determinants and vulnerable populations]

Annals of Family Medicine

Context Social Prescribing (SP) is an approach to help individuals address their health and social needs wherein a healthcare practitioner refers patients to non-clinal services in the community. Models of SP vary, and the experience of patients across these models is less known. ARC: All (N=17) participants used navigation.

Patients 130
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Tracing impact: building capacity in patient-oriented primary care research in Ontario and beyond [Patient engagement]

Annals of Family Medicine

Patient Expertise in Research Collaboration (PERC) – primary health care (PHC) is a centre supported by the Ontario SPOR Support Unit. Patient Expertise in Research Collaboration (PERC) – primary health care (PHC) is a centre supported by the Ontario SPOR Support Unit. Instrument: Document analysis, website metrics.

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Developing a patient-reported outcome measure for patient experiences of social needs care [Social determinants and vulnerable populations]

Annals of Family Medicine

Context With the goal of advancing health equity, the US healthcare sector has expanded activities to identify and intervene in patients’ experiences of social adversity, sometimes referred to as "social care". Yet, no measure of patients’ experiences with social care has been developed to date.

Patients 130
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Envisioning roles for patient partners in primary health care systems of the future: A structured priority setting exercise [Patient engagement]

Annals of Family Medicine

Context Primary health care (PHC) is a whole-society approach to health and well-being, providing holistic care to patients across their lifespan. Objective: To engage the PHC community and identify how patient partners can best support primary health care design, delivery, research, and education.

Patients 130
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Coach McLungsSM, Facilitating Shared Decision Making for Asthma - Patients and Caregivers Perspectives [Health care informatics]

Annals of Family Medicine

SDM involves a collaborative process between patients and providers to make informed healthcare choices. Despite its proven benefits in enhancing patient outcomes, real-world constraints such as time, training, and staff availability hinder its widespread implementation. Intervention/Instrument: Survey.

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