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Critics Suggest FDA Approving Aduhelm Will Erode the “Public Trust”: What About Patients’ Trust?

FDA Law Blog

Valentine — For the last 13 years, this blogger has been at the center of what has now been dubbed “patient-focused drug development.” For 6 years, I served as a patient liaison within FDA in what was then called the Office of Special Health Issues. By James E. The practice of medicine was viewed as paternalistic.

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Normalcy, Introspection, & the Experience of Serious Illness: Bill Gardner, Juliet Jacobsen, and Brad Stuart

GeriPal

This sort of stands in the face of what you and I learned in palliative care that illness is an opportunity for spiritual growth and transformation from what we have strived towards in caring for many of our patients. One colleagues of mine in the Netherlands did just interviews with 30 cancer patients and this theme kept coming out.

Illness 129
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Potentially Unsafe Low-evidence Treatments: Adam Marks, Laura Taylor, & Jill Schneiderhan

GeriPal

We and our guests have noticed that in our clinical practices, patients and caregivers seem to be asking for such treatments more frequently. If its potentially unsafe, but has robust evidence, well thats most of the treatments we offer seriously ill patients! Think chemotherapy to imminently dying patients, or CPR. Think chemo.

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What is going on with MAID in Canada? Bill Gardner, Leonie Herx, & Sonu Gaind

GeriPal

In further contrast to the United States, MAID in Canada is almost entirely administered by a clinician, whereas in the United States patients must self administer. Panelists Bill Gardner, Sonu Gaind, Leonie Herx have stated they have no relationships to disclose. So being well and also potentially periods of dying. Alex: Oh.

Illness 144
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Hospice in Prison Part 2: An interview with the Pastoral Care Workers

GeriPal

But the other was she read an article about our hospice in the May of 2018 New York Times magazine. It’s emotionally hard, but it’s also rewarding because I have such a meaningful life, especially when you see the family members of the patient are so grateful that you’re there. ” He was hardcore.

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Conscientous Provision of MAID and Abortion: Robert Brody, Lori Freedman, Mara Buchbinder

GeriPal

We start by talking with Robert Brody, an internist who recalls physicians helping patients die during the height of the AIDS epidemic in San Francisco. Robert was first asked by one of his own patients for assistance in dying in 1991, far before aid in dying was legalized in California in 2016.