GeriPal

SEPTEMBER 22, 2022

And in response, the family or patient looked at you like you were from another planet? Coming off as rote and scripted during a serious illness conversation can have a similar off-putting impact on patients and families. Links: – Uncanny Valley post on Josh’s fantastic substack Notes from a Family Meeting.

Illness 101

Illness IT Patient-Centered Patients 101

GeriPal

AUGUST 31, 2023

Summary Transcript Summary How do people react when they hear they have a serious illness? And some people, in addition or instead, engage in deep introspection on how to make meaning or live with or understand this experience of serious illness. Shock, “like a car is rushing straight at me” (says Bill Gardner on our podcast).

Illness 128

Illness IT Diagnose Medical 128

GeriPal

AUGUST 29, 2024

Summary Transcript CME Summary Serious illness communication is hard. During the podcast, we reference a newly released second-edition book that our guests published titled “ Navigating Communication with Seriously Ill Patients: Balancing Honesty with Empathy and Hope.” Eric 01:42 So we’ ve got an exciting topic today.

IT 132

IT Illness Family Families 132

GeriPal

JUNE 13, 2024

Summary Transcript Summary I always find cachexia in serious illness puzzling. In today’s podcast, we had the opportunity to learn from a renowned expert in palliative care, Eduardo Bruera, about cachexia and anorexia in serious illness. Alex 24:58 I’m so glad you mentioned the family. Alex 03:31 That was fun.

Illness 133

Illness Patient-Centered Patients IT 133

GeriPal

JANUARY 25, 2024

Summary Transcript Summary In a JAMA 2020 systematic review of palliative care for non-cancer serious illness, Kieran Quinn found many positives, as we discussed on our podcast and in our editorial. He also found gaps, including very few studies of patients with lung disease, and little impact of trials on quality of life.

Patient-Centered 122

Patient-Centered IT Illness Patients 122

GeriPal

OCTOBER 6, 2022

Earlier this year palliative care was the correct response to the following clue on the game show Jeopardy: From a Latin word for “to cloak”, it’s the type of care given to seriously ill patients to provide comfort without curing. We had tried to actually select people who didn’t have a serious illness. Marian: Thank you.

Illness 101

Illness Patient-Centered IT Nurse Practitioner 101

GeriPal

JULY 28, 2022

GeriPal post on “fast food” style palliative care in chronic critical illness. Alex: And we are also delighted to welcome Areej El-Jawahri, who is an oncologist at Massachusetts General Hospital as well, who specializes in blood cancers. This is my early father’s day gift from the family. Transcript. This is Eric Widera.

Illness 110

Illness Hospital Patient-Centered Patients 110

GeriPal

AUGUST 11, 2022

– Serious Illness Conversation Guide podcast. What I fell in love with and felt incredibly compelled by was the taking care of seriously ill patients and particularly helping them negotiate emotionally the experience of being very seriously ill. There was no conversation with the patient or the family about this.

Illness 109

Illness IT Family Families 109

GeriPal

SEPTEMBER 1, 2022

Social workers augment a team’s ability to provide whole-person care, often aiding to identify and meaningfully address the wide variety of challenges and unmet needs faced by individuals and families facing serious illness. And so when you have that, that’s so good for the family. That’s so good for us.

IT 102

IT Family Families Clinic 102

GeriPal

APRIL 4, 2024

Arguing for the state of Missouri against the Cruzan’s was Ken Starr, who would later be assigned the role of special prosecutor in the investigation of the Clintons (Whitewater, Lewensky, etc). The hospital refused without a court order, and the case eventually made its way to the Supreme Court. What words to use? Is the POLST useful?

Family 112

Family Families Patient-Centered IT 112

GeriPal

MAY 9, 2024

all of whom focus their efforts on educating the general public about living and dying with a serious illness. Alex: And Sammy Winemaker, who’s a palliative care physician and Associate Clinical Professor at McMaster University in the Department of Family Medicine, Division of Palliative Care. Sammy: Thank you so much.

Education 127

Education IT Illness Healthcare 127

GeriPal

FEBRUARY 8, 2024

The illness narratives suffering, healing, and the human condition. The more we can notice that, the more we can actually be present for that family and actually see how they’re experiencing it. Family member, and with some chagrin- Eric: Powerful nudge. Pain Manag Nurs. 2023 Dec 20:S1524-9042(23)00202-3. 2023.11.004.

IT 137

IT Family Families Physicals 137

GeriPal

AUGUST 25, 2022

And yet, disenrollment from hospice, either due to patient/family revoking the benefit or stabilization of illness (extended prognosis) is remarkably high for people with dementia among some hospices. Eric: Alex, we have a super special today. We’ve got a hospice super special. AlexSmithMD. Transcript. Yes, it is.

Family 106

Family Families IT Patients 106

GeriPal

FEBRUARY 29, 2024

Not the most common circumstances that people with serious illness face where attention and understanding of what my goals and values are. Eric: I do not want my family to listen to my podcasts. So, I generally don’t listen to the podcast afterwards, nor force them on my family. ” Very specific, rare circumstance.

IT 126

IT Patient-Centered Illness Education 126

GeriPal

JUNE 9, 2022

We talk with Kate about how despite how far we’ve come in palliative care research, we still don’t have answers to some fundamental questions, such as: Who should get specialized palliative care? We can’t possibly meet the needs of all people with newly diagnosed serious illness. By diagnosis? By prognosis? It’s what I know.

Consulting 99

Consulting Patient-Centered Diagnosis Referral 99

GeriPal

MAY 22, 2025

Jenny Chen is a palliative care fellow at Yale who regularly sings for her seriously ill patients. My voice is nothing special. And we got all into his family stuff and how he’d been suffering with cancer and his goal. Just encourage patients and families to bring music into their healthcare experience.

IT 96

IT Patient-Centered Patients Board-Certified 96

GeriPal

MARCH 13, 2025

Yes, it means to cloak, but theres more Whole-person-care Total pain Healing as a process distinct from the deterioration of the body Sympomatologists The patient and family as the unit of care Our guests referenced many articles on this podcast, linked above and below. by Kearney. I promise its short. Well, I guess just over 20 years ago.

IT 104

IT Patient-Centered Family Families 104

GeriPal

JULY 11, 2024

And, you know, I just thought it was a really special song. We get a bit of, in the veteran population, kind of a mix of a lot of mental health issues thrown into these comorbid illnesses, including cirrhosis, but it’s usually the decompensated cirrhotics or the folks with liver cancer and cirrhosis, or one of both.

Patient-Centered 109

Patient-Centered IT Patients Clinic 109

GeriPal

MAY 25, 2023

And, you know, I really leaned in from my perspective as a primary care geriatrician to hearing from what my patients and their family caregivers are asking me for and asking me about, and they’re asking me about how they can prepare. And that family was not necessarily a trusted network. Alex: LJ, are you going to add to that?

Community 95

Community IT Patient-Centered Primary Care 95

GeriPal

APRIL 28, 2022

Eric: I’m looking forward to talking about art and humor in palliative care and we’re caring for seriously ill patients. I think that there are times when we use humor to cope, and that’s a special and very tender space for of people to share in, but is not something that you want to expose to the light of the world.

IT 145

IT Hospital Patients Illness 145

GeriPal

MARCH 24, 2023

2021 Association of Hospice Profit Status With Family Caregivers’ Reported Care Experiences. I’m very proud of the work that we do every day and we take care of patients and families no matter where they live or who they are to help them meet their end of life goals. How do we make this work for patients and families?

IT 113

IT Provider Patients Family 113

GeriPal

JUNE 5, 2025

nursing homes grapple with serious illnesses, and roughly half experience dementia. Despite these substantial needs, specialized palliative care beyond hospice is rare in nursing homes. How to think about primary and specialized palliative care in this setting. Consider this: the majority of the 1.4 Cognitive impairment.

Nurse Practitioner 78

Nurse Practitioner Referral Consulting Board-Certified 78

GeriPal

APRIL 6, 2023

That’s why we use the terms assessment and intervention and we think of assessment as a skill of a very advanced skill that chaplains have of doing an in-depth evaluation of a patient or family member, and then the interventions should certainly follow naturally from that. LaVera: I trained at UCSF in family medicine.

IT 99

IT Patient-Centered Family Families 99

GeriPal

MARCH 28, 2024

Alex: Recently you talked about the other trial, also with a nudge, and that was non-cancer, serious illness. I am part of some other work in the ICU world looking at time-limited trials and trying to better define what those are, how we talk about them, how we talk about them with patients and families. Kate: Sounds right.

Consulting 115

Consulting Patient-Centered IT Patients 115

GeriPal

AUGUST 8, 2024

We cover a wide range on this topic, weaving in our own stories of loss with Thomas’s experiences, stories, and poems from years of caring for families after their loved one’s have died. Eric 00:05 And Alex, we have a special episode today — B etween T wo U rns. And I got to sing Tom Waits’ Time, one of my favorites.

IT 124

IT Family Families Relationship 124

GeriPal

DECEMBER 5, 2024

So has a special resonance for, I think, a lot of people who are Tragically H ip fans. And I was interviewing candidates for our clinical fellowship and interviewed Alexis, who had been like family medicine doc before, done all kinds of cool things. It was my first concert without my parents. Ricky 11:23 Yeah. So rewind a few years.

IT 107

IT Community Patients Family 107

GeriPal

APRIL 10, 2025

I asked emergency medicine clinicians what they thought when a patient who is seriously ill and DNR comes to the ED, and some responded, (paraphrasing), what are they doing here? Most emergency providers wanted to do the right thing for seriously ill patients, but they didnt have the knowledge, skills, or experience to do it.

Patient-Centered 77

Patient-Centered IT Hospital Patients 77

GeriPal

MARCH 20, 2025

We discussed what makes an illness terminal, what goes into assessing capacity for an action as simple as requesting something to drink, and whether the TV show Severance illuminates any of these answers. But before we talk about this subject, about nutrition, hydration at the end of life, people with advanced illness, or maybe not so much.

IT 87

IT Patient-Centered Patients Medical 87

GeriPal

SEPTEMBER 8, 2022

And also it’s a little bit of an insult to one’s identity to feel like if this special person in your life can be forgotten, then you can be forgotten. But our living memory home is a way to both maintain that connection, because that’s the fear is that you’re going to lose this connection to this very special person.

IT 100

IT Relationship Complication Specialization 100

GeriPal

FEBRUARY 20, 2025

And this is, I’m going to go a little wonky just for a second because like looking at the 11 things that you looked at for trauma events, some seem like pretty universal trauma events, like having a life threatening illness, a child of yours who died being physically abused when you were young. Which may not be necessarily traumatizing.

IT 66

IT Patient-Centered Screening Patients 66

GeriPal

MARCH 31, 2022

Patient Poets: Illness from the Inside Out. I think it’s titled Patient Poets Illness. Marilyn: Patient Poets: Illness From Inside Out. Alex: Patient Poets: Illness From Inside Out. And so poetry was just part of the family discourse. Steve had a very special ability in that. AlexSmithMD. Since a kid?

IT 70

IT Patients Medical Illness 70

GeriPal

SEPTEMBER 5, 2024

You know, she would have had 90 really good years, and she would have just gone into a coma with no blood pressure and died, you know, with, like, a day and a half of illness. She entertained her family. Thanksgiving’s coming up, you’re having your family, Christmas coming up. But she didn’t die. And I was.

Patients 98

Patients IT Patient-Centered Hospital 98

GeriPal

MARCH 16, 2023

We have two authors, books, op-eds, prolific authors, and today’s podcast is a two-part special. So this week we’re going to be talking about writing for the lay public, and next week we’ll be publishing a podcast on writing for healthcare providers. There’s a little paranoia in the family for good reason.

IT 105

IT Healthcare Professional Healthcare Transportation 105

GeriPal

JUNE 6, 2024

On today’s podcast Areej El-Jawahri, oncologist specializing in blood cancers at MGH, says that sexual health is one of the top if not the top issue among cancer survivors. Alex 00:06 We are delighted to welcome back Areej El-Jawahri, who’s an oncologist at Massachusetts General Hospital who specializes in blood cancers.

Illness 130

Illness IT Physicals Patients 130

GeriPal

JULY 25, 2024

The PPS is one of the most widely used prognostic tools for seriously ill patients, but the prognostic estimates given by the PPS are based on data that is well over a decade old. Eric 00:13 And Alex, we have a super special today, three different articles. Alex 00:18 Prognosis, super special today. Why do this?

Family 106

Family Families Patient-Centered IT 106

GeriPal

APRIL 26, 2024

Summary Transcript Summary As Betty Ferrell says on our podcast today, nurses play an essential role in care of people with serious illness. He is a palliative care physician at the Durham VA Medical Center in Duke and blogs on Substack at Notes from a Family Meeting. Who spends the most time with the patient in the infusion center?

Patient-Centered 119

Patient-Centered IT Patients Consulting 119

GeriPal

MARCH 27, 2025

And so this is our way of supporting non English speaking families in advanced care planning. Alex 02:44 Still suffering from some illness from there, which is why I was sick and not in the office with Eric today. And I have a long interest in identifying family caregivers and supporting them in care delivery. Eric 06:26 Great.

Primary Care 79

Primary Care IT Clinic Illness 79