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When the diagnosis is personal: What my mother’s Alzheimer’s taught me about healing

KevinMD

I’ve counseled families through heartbreaking prognoses, navigated complex care plans, and educated patients about conditions like Alzheimer’s disease. I thought I understood what it meant to live with a memory disorder, until my mother became my most challenging, most personal patient.

Diagnosis 157
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The Impact of COVID-19 Pandemic on Patient Care of Adult Patients with Acute Kidney Injury in Academic Medical Centers [Big data]

Annals of Family Medicine

Context: The impact of the COVID-19 pandemic on patients with acute kidney injury (AKI) in Academic Medical Centers (AMCs) remains unclear. Objective: To assess the epidemiology and mortality risk among patients with AKI discharged from AMCs in the US from October 2019 to December 2023. The mean observed LOS was 7.1

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Decisional Regret Two-Year after Diagnosis with Low-risk Prostate Cancer in a Population-based Sample [Cancer research (not screening)]

Annals of Family Medicine

Objective: To assess decisional regret (DR) and QOL changes by treatment choice (surgery, radiation or active surveillance) two years after diagnosis in a cohort of men with LPC. Patients: Black and White men ≤75 years with newly diagnosed LPC, 2014 to 2017. Design: Longitudinal cohort study. years at baseline (SD=6.7,

Diagnosis 130
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Patient Advocacy Group Leaders Perceptions on Primary Cares Role in Caring for Patients with a History of Breast Cancer [Health care services, delivery, and financing]

Annals of Family Medicine

Context Patient advocacy groups engage patients, families, and caregivers in navigating the cancer landscape, focusing on early detection/screening, as well as psychosocial and financial support during treatment. Population Studied Diverse leaders of cancer-focused patient advocacy groups. We identified four consistent themes.

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Coach McLungsSM, Facilitating Shared Decision Making for Asthma - Patients and Caregivers Perspectives [Health care informatics]

Annals of Family Medicine

SDM involves a collaborative process between patients and providers to make informed healthcare choices. Despite its proven benefits in enhancing patient outcomes, real-world constraints such as time, training, and staff availability hinder its widespread implementation. Intervention/Instrument: Survey.

Asthma 130
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Understanding Barriers to Congenital Syphilis Prevention and Care Through Provider and Patient Perspectives [Infectious diseases (not respiratory tract)]

Annals of Family Medicine

It evaluated the nature and impact of stigma, health literacy, effective communication with healthcare providers, and the emotional responses associated with a CS diagnosis. Mothers noted withholding their diagnosis due to feelings of shame, guilt, or embarrassment.

Provider 130
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Important Outcomes for Type 2 Diabetes Mellitus: The Patients Perspective [Diabetes and endocrine disease]

Annals of Family Medicine

Context: Patient Important Outcomes (PIOs) was first introduced in the literature with the criticism that research studies were designed with outcomes relevant to health care providers, but not relevant/important to patients. Study Design & Analysis: Mixed methods study employing physician survey and patient focus groups.

Diabetes 130