BMJ

AUGUST 20, 2021

By Paul Amendola, Executive Director, VecnaCares Reference: Bartlett L , Avery L , Ponnappan P , et al, Insights into the design, development and implementation of a novel digital health tool for skilled birth attendants to support quality maternity care in Kenya, Family Medicine and Community Health 2021; 9: e000845.

Patient-Centered 40

Patient-Centered Clinic Provider Patients 40

GeriPal

DECEMBER 2, 2022

She directs UCSF MERI’s patient, family, and clinician support with classes and consultation on resiliency, well-being, and grief. Alex: First three words would be, family and history and diversity. Judy Long, MDiv, BCC , palliative care chaplain and educator at UCSF and caregiver. Anne: Is there a movement? I love them.

Community 102

Community IT Individual Patient-Centered 102

FDA Law Blog

MARCH 13, 2023

To further expand patient input into product development, the FDA’s Center for Biologics Evaluation and Research (CBER) Office of Therapeutic Products or “OTP” (formerly the Office of Tissues and Advanced Therapies, or “OTAT”) is holding a free public workshop titled, Clinical Trials: The Patient Experience.

Patients 98

Patients Patient-Centered Families Family 98

GeriPal

OCTOBER 12, 2023

Instead, what if your surgeon told you that the operation she was discussing could help with only 4 things: live longer, feel better, prevent disability, or obtain a diagnosis? What I need to navigate with that patient and their family, is it valuable to you? And when they talk to patients and families, it’s a pretty easy sell.

IT 129

IT Families Family Patient-Centered 129

GeriPal

SEPTEMBER 19, 2024

Within eight weeks of diagnosis of advanced disease. So I don’t know how clinically meaningful that week difference was to families. I’m workshopping what I’m going to say at the “Congress du caretive” [speaking in French]. So I think that was one of the key eligibility criteria. English or spanish speakers.

Patient-Centered 120

Patient-Centered IT Patients Hospital 120

GeriPal

APRIL 21, 2022

Mike Rabow shares his award winning poem about coming out to the world about his diagnosis with multiple sclerosis. . Links to Redwing’s poetry workshops: Food for Thought Poetry for Resiliency. Alex: It sounds like that might be a part of the workshops that you run. Redwing: That’s what we do in these workshops.

Patient-Centered 93

Patient-Centered IT Community Illness 93

GeriPal

JUNE 26, 2025

We focus on function and mortality because these are outcomes that really are important to patients and families. And it was her conceptual, like incorporation of functional decline, some measure of functional decline along with a serious illness diagnosis that you’re utilizing here. What is your function? And do you die?

Illness 63

Illness Hospital IT Patient-Centered 63