GeriPal

DECEMBER 2, 2022

Judy Long, MDiv, BCC , palliative care chaplain and educator at UCSF and caregiver. She directs UCSF MERI’s patient, family, and clinician support with classes and consultation on resiliency, well-being, and grief. Alex: First three words would be, family and history and diversity. Anne: Is there a movement? I love them.

Community 101

Community IT Individual Patient-Centered 101

FDA Law Blog

MARCH 13, 2023

To further expand patient input into product development, the FDA’s Center for Biologics Evaluation and Research (CBER) Office of Therapeutic Products or “OTP” (formerly the Office of Tissues and Advanced Therapies, or “OTAT”) is holding a free public workshop titled, Clinical Trials: The Patient Experience.

Patients 98

Patients Patient-Centered Families Family 98

GeriPal

OCTOBER 12, 2023

Instead, what if your surgeon told you that the operation she was discussing could help with only 4 things: live longer, feel better, prevent disability, or obtain a diagnosis? What I need to navigate with that patient and their family, is it valuable to you? I did it before and this guy, he was 85, but he was climbing Mount Everest.”

IT 128

IT Families Family Patient-Centered 128

GeriPal

SEPTEMBER 19, 2024

Within eight weeks of diagnosis of advanced disease. And then we started pushing a lot more surveys electronically to patients, which, of course, has its challenges, because not everyone’s as tech savvy as, you know, our highly educated patients who have access to technology. English or spanish speakers. Is that fair to say?

Patient-Centered 119

Patient-Centered IT Patients Hospital 119

GeriPal

JUNE 26, 2025

We focus on function and mortality because these are outcomes that really are important to patients and families. And it was her conceptual, like incorporation of functional decline, some measure of functional decline along with a serious illness diagnosis that you’re utilizing here. What is your function? And do you die?

Illness 93

Illness Hospital IT Patient-Centered 93

GeriPal

APRIL 21, 2022

Mike Rabow shares his award winning poem about coming out to the world about his diagnosis with multiple sclerosis. . We talk not only about reading poetry, but also writing poetry, and using poetry in medical education as a healing modality. Links to Redwing’s poetry workshops: Food for Thought Poetry for Resiliency.

Patient-Centered 93

Patient-Centered IT Community Illness 93