15 Years Strong: Rare Disease Week’s Remarkable Journey of Support
FDA Law
MARCH 7, 2024
NORD’s announcement followed in the footsteps of European rare disease patient organization, Eurodis , who had celebrated the first Rare Disease Day the year before. What started as a day has — due to its popularity and the persistent efforts of patients and industry — evolved into a week-long event. recognition of Rare Disease Day.
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