GeriPal

JULY 21, 2022

Love to talk about also in the serious illness population. But then once it was open, started seeing a lot of other populations: not just our own hospital population, but a lot more just community members calling with concerns about driving. Certainly my bias is that healthcare professionals really do have a role in this discussion.

Family 102

Family Families IT Diagnosis 102

GeriPal

FEBRUARY 29, 2024

Not the most common circumstances that people with serious illness face where attention and understanding of what my goals and values are. Because this is not… Our traditional academic route of dissemination is focusing on communities that don’t have a lot of access to Geriatrics or Palliative care or learning opportunities.

IT 126

IT Patient-Centered Illness Education 126

GeriPal

JULY 28, 2022

GeriPal post on “fast food” style palliative care in chronic critical illness. Jennifer: Yeah, so I think as all the listeners of this podcast know, and I know he did do a podcast with you guys when he was still able to verbally communicate, with Randy Curtis’ diagnosis of, I keep wanting to say AML, ALS. Transcript.

Illness 110

Illness Hospital Patient-Centered Patients 110

GeriPal

MAY 12, 2022

Prognosis communication and the subtle ways we may communicate it without intention. Community-based palliative care networks . It’s easier to concentrate on cure, diagnosis, cure. And I believe it needs the community. And the community came in. Social pain and loneliness. What do you think about that?

Community 115

Community IT Relationship Healthcare 115

GeriPal

JANUARY 30, 2025

But in reality, given workforce shortages and just the challenges and the resources necessary to be able to provide early integrated palliative care from the time of diagnosis of advanced cancer, the model simply is not implementable, at least not in our current state with our available infrastructure and resources. What do we do with that?

Telehealth 105

Telehealth Patient-Centered IT Patients 105

GeriPal

OCTOBER 24, 2024

Alex 00:30 And we are also delighted to welcome Eloise Theisen, who’s a palliative care nurse practitioner at Stanford and CEO and co- c ounder of Radical Health Clinician Network, which helps patients use cannabis to treat chronic and age related illness. For instance, Friday night, Saturday night parties are of community wide.

Medical 98

Medical IT Patient-Centered Healthcare 98

GeriPal

JANUARY 11, 2024

To be eligible in Canada patients must have a “ grievous and irremediable ” condition, including disability ; they do not have to have a terminal illness with a prognosis of less than 6 months. A planned expansion of MAID to include people with mental illness was placed on hold until March 2024. So less than six months to live.

Illness 144

Illness IT Medical Provider 144

GeriPal

FEBRUARY 23, 2023

In general, the case is a patient who wound up with a new diagnosis of metastatic cancer during the course of the admission and at a certain point had full capacity, was able to make decisions and communicate. Eric: Lynn or Anne? Eric: And just for our listeners, can you briefly describe the case? Lynn: Sure. Anne Rohlfing: Yeah.

Family 97

Family Families Patient-Centered IT 97

GeriPal

MAY 4, 2023

There’s all this stuff that we’re supposed to be doing at that stage of life and then you add the complexity of the serious illness. If there’s a serious illness, all of a sudden, you’re in this place where now you’re struggling between this growing independence and also then this dependence that you may have.

Family 83

Family Families IT Illness 83

GeriPal

MAY 9, 2024

all of whom focus their efforts on educating the general public about living and dying with a serious illness. So we are going to leapfrog over the healthcare system education and we’re going to go straight to the citizens of the world and we’re going to give them the insider tips to how to improve their illness experience.”

Education 127

Education Illness IT Healthcare 127

GeriPal

MAY 22, 2025

Jenny Chen is a palliative care fellow at Yale who regularly sings for her seriously ill patients. Anyways, the current study is looking at the impact of music on well being after a new dementia diagnosis. And this has been really interesting because people are like, they just got their diagnosis. I forgot about.

IT 96

IT Patient-Centered Patients Board-Certified 96

GeriPal

OCTOBER 20, 2022

How HHS and ASPE solicit input from clinicians, community leaders, and older adults and how much it impacts policy decisions (spoiler alert: this involvement is CRUCIAL). There’s a team now with them behind them making sure that they stay safe and held in our communities. How to make your voice heard and get involved.

Complication 52

Complication Patient-Centered IT Patients 52

GeriPal

MARCH 7, 2024

And then second, I was someone who was a Parrot Head for years and years and it was just amazing how the community came together. That was really the theme song of how the community came together. He looked very ill. This is the non-medical part of someone being ill. How do you see the light? This is not that.

Provider 117

Provider Illness IT Healthcare 117

GeriPal

SEPTEMBER 1, 2022

Social workers augment a team’s ability to provide whole-person care, often aiding to identify and meaningfully address the wide variety of challenges and unmet needs faced by individuals and families facing serious illness. We need to figure out how to create this community of palliative care social work scholars. Eric: Yeah.

IT 102

IT Family Families Clinic 102

GeriPal

FEBRUARY 27, 2025

Today we talk with experts Janet Ho, Sach Kale, and Julie Childers about opioid use disorder and serious illness. Eric 00:51 So we’re gonna be talking about caring for people with serious illness and substance abuse. Who has a song request for Alex before we talk about substance use disorder and serious illness?

Patients 72

Patients Clinic Patient-Centered Illness 72

GeriPal

JUNE 30, 2022

But we know that 30% of all decedents who are Medicare beneficiaries either die from dementia or have an existing diagnosis of dementia, which is something we talk about quite often, Joel and I. Fifty percent have a diagnosis in their record of decedents have dementia. Joel: Yeah. Eric: Yeah. What did you find in the JAGS paper, Samir?

Patient-Centered 101

Patient-Centered Complication Patients IT 101

GeriPal

OCTOBER 19, 2023

And we have Scott Halpern, who is Professor of Medical Ethics and Health Policy and Director of the Palliative and Advanced Illness Research Center or Payer Center at the University of Pennsylvania. And he’s a professional Uber driver for his daughter’s softball games.[laughter] Alex: National POLST Collaborative.

Patient-Centered 126

Patient-Centered IT Patients Illness 126

GeriPal

JUNE 22, 2023

And then from that, through community activists, ACT UP, legislators who felt that there needed to be something done, doctors within CDCR who cared passionately about the HIV population and others, all came together and we were able to eventually get funding for this 17-bed inpatient hospice. It’s by choice, just like in the community.

Family 132

Family Families IT Community 132

GeriPal

AUGUST 25, 2022

Second, Hospice was originally designed for patients with advanced cancer, but the fastest growing admitting diagnosis is dementia. And yet, disenrollment from hospice, either due to patient/family revoking the benefit or stabilization of illness (extended prognosis) is remarkably high for people with dementia among some hospices.

Family 106

Family Families IT Patients 106

GeriPal

FEBRUARY 17, 2022

I you use the Lee Schonberg prognostic index for community dwelling older adults you will be directed to the tool, and it will automatically place the life expectancy at the calculated prognostic estimate. . And so many older adults with diagnosis of osteoporosis have never received any therapy for it. See screenshot below.

Clinic 67

Clinic IT Patients Medical 67

GeriPal

FEBRUARY 9, 2023

For example, we spend the first half talking about a RCT simulation study of clinician verbal and non-verbal communication with a seriously ill patient with cancer. So we did a perfect cross so that the race and actual primary diagnosis was perfectly matched across groups. There’s that recognition piece.

Patient-Centered 111

Patient-Centered Patients IT Healthcare 111

GeriPal

OCTOBER 27, 2022

As a springboard for this conversation we discuss new prognostic models developed to predict (simultaneously) mortality, disability, and mobility impairment ( Alex Lee first author, JAGS ) and mortality for people with dementia residing in the community ( James Deardorff first author, JAMA IM ). . Why did you do this?

IT 95

IT Clinic Screening Patients 95

GeriPal

SEPTEMBER 8, 2022

Holly has accumulated mountains of evidence for the diagnosis of prolonged grief disorder as a specific condition primarily notable for a yearning over a year after the death. Alex: Their own death in advance, terminally ill people. We say it’s about 4% of those who are bereaved, who are from community-based samples.

IT 100

IT Relationship Complication Specialization 100

GeriPal

JUNE 26, 2025

I think part of this does stem from a clinical experience and also some of the theoretical models that have evolved around serious illness, you know, to think specifically about dementia. And so trying to think a little bit more about what could be driving some of those alterations in the trajectory for all kinds of serious illness.

Illness 93

Illness Hospital IT Patient-Centered 93

GeriPal

JUNE 6, 2024

Eric 01:13 So we got a lot to cover today on sexuality, sexual health and serious illness. So we got a lot to cover on sexuality, sexual health, and serious illness. So this is about two and a half, three years out from leukemia diagnosis. Don, welcome to GeriPal. Don 01:11 Thank you so much. Arish, I missed your talk.

Illness 130

Illness IT Physicals Patients 130

GeriPal

SEPTEMBER 19, 2024

Alex 12:36 And most of our listeners are like clinician, practicing clinicians caring for older adults, people with serious illness. Within eight weeks of diagnosis of advanced disease. And the entire community of palliative care said yes, not a palliative care study. I guess we would say that most trials are superiority trials.

Patient-Centered 119

Patient-Centered IT Patients Hospital 119

GeriPal

APRIL 21, 2022

Poetry helps us grapple with our own experiences of illness. Mike Rabow shares his award winning poem about coming out to the world about his diagnosis with multiple sclerosis. . This has become a community of people all over the world who come together every week. Alex: Mm-hmm (affirmative). Alex: Mm-hmm (affirmative).

Patient-Centered 93

Patient-Centered IT Community Illness 93

GeriPal

MAY 1, 2025

So it felt like it was being part of this huge kind of change in the whole environment and the whole experience of that community. Alex 16:55 My guess is probably not something that most geriatricians or internists or family medicine docs caring for older people have on their differential diagnosis. Is a new diagnosis of HIV.

Primary Care 94

Primary Care IT Provider Clinic 94

GeriPal

MARCH 27, 2025

The reason I chose this song is because I’m currently working on bringing advanced care planning sessions to the Latino community. In our planning sessions, one of the biggest barriers to advanced care planning in this community is just talking about death. Alex (singing) Alex 02:34 All right, this was a fun one.

Primary Care 79

Primary Care IT Clinic Illness 79

GeriPal

JULY 25, 2024

The PPS is one of the most widely used prognostic tools for seriously ill patients, but the prognostic estimates given by the PPS are based on data that is well over a decade old. Next, we talk with James Deardorff about whether we can accurately predict nursing home level of care in community-dwelling older adults with dementia.

Family 106

Family Families Patient-Centered Patients 106

GeriPal

SEPTEMBER 14, 2023

If you are interested in learning more and meeting a community of folks interested in hospital-at-home, check out the hospital-at-home user group at hahusersgroup.org or some of these publications: Hospital-Level Care at Home for Acutely Ill Adults: A Randomized Controlled Trial. How is it financed and what comes next?

Hospital 115

Hospital Patient-Centered Supply Chain IT 115