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Transforming the Culture of Dementia Care: Podcast with Anne Basting, Ab Desai, Susan McFadden, and Judy Long

GeriPal

Rather they’re Ill, maybe they’re aging unsuccessfully, but never really resilient. How do you maintain successful aging, which is often free of disease or illness or disability? I started out working on a grant in a NeuroPAL clinic with people that had advanced Parkinson’s and related disorders and Alzheimer’s.

Community 101
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What Do Patients Have to Say about Gene Therapy Trials? An Upcoming FDA Public Meeting to Hear from Patients and Caregivers

FDA Law Blog

Who better than people living with a condition to inform drug companies, physicians, academics, and the FDA on what it is like to live with their condition, what symptoms most impact their lives, what goes into their decision about whether to participate in a clinical trial, and what kind of treatment effects would be most meaningful to them?

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Surgical Communication: A Podcast with Gretchen Schwarze, Justin Clapp and Alexis Colley

GeriPal

Instead, what if your surgeon told you that the operation she was discussing could help with only 4 things: live longer, feel better, prevent disability, or obtain a diagnosis? And, what if your surgeon openly discussed the expected ‘bad stuff’ of post-operative recovery, instead of rotely reciting a list of possible complications?

IT 128
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Health and Wealth Shocks: Lauren Hunt, Rebecca Rodin, Tsai-Chin Cho

GeriPal

But from our clinical work, many of us are familiar with people with dementia who experience sudden shocks to their health, think hip fracture, think hospitalization for pneumonia. Sometimes people call them health shocks, but we kind of all, like, clinically, intuitively know what these things are. Has really changed.

Illness 73
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Stepped Palliative Care: A Podcast with Jennifer Temel, Chris Jones, and Pallavi Kumar

GeriPal

Eric 07:31 A clinical perspective, why is it important to test this stepped care model versus implementing more? And now when I think about the clinic at Duke, when we’re really running on all cylinders, we can get ourselves up to a five, six, seven week wait for a new palliative care referral. Jennifer 07:31 From.

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Poetry & Palliative Care: Podcast with Mike Rabow and Redwing Keyssar

GeriPal

Poetry helps us grapple with our own experiences of illness. Mike Rabow shares his award winning poem about coming out to the world about his diagnosis with multiple sclerosis. . Links to Redwing’s poetry workshops: Food for Thought Poetry for Resiliency. Alex: It sounds like that might be a part of the workshops that you run.