FDA Law

MARCH 13, 2023

The FDA took an early lead in the evolution of this movement when they launched the Patient Focused Drug Development (PFDD) initiative in 2012. One family’s daughter was the first U.S. Other families have had to try and get access in Milan, Italy, where a gene therapy for MLD has already been approved.

Patients 98

Patients Patient-Centered Families Family 98

GeriPal

MARCH 7, 2024

We’ve invited two death doulas, Jane Euler and John Loughnane (who is also a family doc and palliative care physician), to talk about the role of a doula at the end of life. There’s an organization that I took my training from, which began, I want to say, in 2012. John: I am what I am, which is a family practice doctor.

Provider 117

Provider Illness IT Healthcare 117

GeriPal

MARCH 20, 2025

Alex 00:48 And we’re delighted to welcome back Josh Briscoe, who’s a palliative care doc at the Durham VA Medical center in Duke and blogs at Notes from a Family Meeting. And it was very clear, and she could now no longer recognize her family members. And the family says, dad would never want to live like this.

IT 87

IT Patient-Centered Patients Medical 87

Physician's Weekly

JUNE 25, 2025

He kept his diagnosis hidden from friends and family because he knew how people talked about HIV. “I thought my family was going to disown me,” he said. At his first job at an HIV organization in Jackson, Mississippi, Sturdevant regularly checked in with clients who didn’t have family members to support them.

Government 52

Government Community Families Family 52