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What Do Patients Have to Say about Gene Therapy Trials? An Upcoming FDA Public Meeting to Hear from Patients and Caregivers

FDA Law

Who better than people living with a condition to inform drug companies, physicians, academics, and the FDA on what it is like to live with their condition, what symptoms most impact their lives, what goes into their decision about whether to participate in a clinical trial, and what kind of treatment effects would be most meaningful to them?

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Episode 141: Antiracism in Medicine Series Episode 2 – Dismantling Race-Based Medicine Part 1: Historical and Ethical Perspectives with Edwin Lindo

The Clinical Problem Solvers

37:50​ Race vs. ancestry vs genetics–implications for research and clinical practice 52:02 ​What can we start doing tomorrow? This education needs to span the whole MedEd continuum. Given that there is no standard definition of race, its imprecision does not meet the standards of clinical medicine. 2012 Sep;53(3):279-95.

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End-of-Life Doulas: A Podcast with Jane Euler, Beth Klint, and John Loughnane

GeriPal

He looked very ill. We are doulas for those with serious illness and those at end-of-life, just a longitudinal relationship, nonmedical support to provide presence. There’s an organization that I took my training from, which began, I want to say, in 2012. My wife is also a physician and she said he’s dying.

Provider 117
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RCT of Default Inpatient PC Consults: Kate Courtright & Scott Halpern

GeriPal

Accreditation In support of improving patient care, UCSF Office of CME is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

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Hastening Death by Stopping Eating and Drinking: Hope Wechkin, Thaddeus Pope, & Josh Briscoe

GeriPal

We discussed what makes an illness terminal, what goes into assessing capacity for an action as simple as requesting something to drink, and whether the TV show Severance illuminates any of these answers. But before we talk about this subject, about nutrition, hydration at the end of life, people with advanced illness, or maybe not so much.

IT 87
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Loss of DEI Hurts Everyone: Farah Stockman, Ali Thomas, Ken Covinsky

GeriPal

Alex 20:58 Farah, appreciate the medicine metaphor for our clinical audience. Alex 23:27 I think Ken answered his own question, and I’d like to invite maybe Ali to use this as an opportunity to talk about the struggle for education within black community. That looks at what the Baha’is have been doing since 2012.

IT 70