FDA Law Blog

MARCH 7, 2024

Sasinowski — In 2009 — 15 years ago — the National Organization for Rare Disorders (NORD) announced the first U.S. NORD’s announcement followed in the footsteps of European rare disease patient organization, Eurodis , who had celebrated the first Rare Disease Day the year before. By Frank J. recognition of Rare Disease Day.

Government 69

Government Community Specialization Education 69

The Clinical Problem Solvers

DECEMBER 16, 2020

19:05 Clarifying the “ethics vs science” argument and critiquing research techniques 22:00 Resurgence of race-based speculation in COVID-19-related research 25:57 Implantation of ideas about innate racial inferiority within medicine 28:32 Will removal of race from algorithms potentially harm our patients?

Clinic 52

Clinic Education Clinical Practice Patient-Centered 52

GeriPal

MARCH 24, 2023

I think some individuals thought there was cherry-picking of stories that made it seem like hospice is this bad thing, that it’s taking advantage of vulnerable individuals and it didn’t talk enough about the good things that hospice does. And that’s an ADC of two to three patients a day. Eric: Great.

IT 114

IT Provider Patients Families 114

GeriPal

APRIL 10, 2025

I asked emergency medicine clinicians what they thought when a patient who is seriously ill and DNR comes to the ED, and some responded, (paraphrasing), what are they doing here? Most emergency providers wanted to do the right thing for seriously ill patients, but they didnt have the knowledge, skills, or experience to do it.

Patient-Centered 77

Patient-Centered IT Hospital Patients 77

GeriPal

MARCH 10, 2022

She’s a geriatric nurse practitioner specializing in palliative care, and assistant professor at the University of Maryland School of Nursing. We got rid of all these psychotropic medications and this person … one individual had had a vascular dementia. Welcome to the GeriPal Podcast, Joan. Joan: Thanks. Ruth: Sure.

Nurse Practitioner 60

Nurse Practitioner Hospital Families Family 60