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15 Years Strong: Rare Disease Week’s Remarkable Journey of Support

FDA Law Blog

Sasinowski — In 2009 — 15 years ago — the National Organization for Rare Disorders (NORD) announced the first U.S. In 2009 I served as Chair of NORD and through the hard work of countless colleagues we inaugurated the first Rare Disease Day. By Frank J. recognition of Rare Disease Day.

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Episode 148: Antiracism in Medicine Series Episode 4 – Dismantling Race-Based Medicine Part 2: Clinical Perspectives

The Clinical Problem Solvers

Tsai has seen race-based medicine play out in clinical practice 10:45 What role should race play in making clinical decisions? 13:16 Status of the current conversation on removing race from eGFR calculators: why is it so contentious? Poet Marge Piercy has written, “The work of the world is as common as mud.”

Clinic 52
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Is Hospice Losing Its Way: A Podcast with Ira Byock and Joseph Shega

GeriPal

Usually I don’t put a lot of background on this podcast, but I got to … in November of 2022, Ava Kofman, along with ProPublica, published … well I won’t want to say great, published an article in The New Yorker that I think it was divisive in the hospice and palliative care community. Is it you, Ira? Eric: Great.

IT 113
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RCT of PC in ED: Corita Grudzen, Fernanda Bellolio, & Tammie Quest

GeriPal

primary palliative care interventions seem to fail, whereas specialized palliative care interventions have a relatively robust track record of success. I cant do the primary thing Ive been trained to do: ABC, ABC, ABCs. They got training in Vital Talk and ELNEC. They got feedback. So did it matter? Why do so many (most, all??)

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Understanding the Variability in Care of Nursing Home Residents with Advanced Dementia

GeriPal

She’s a geriatric nurse practitioner specializing in palliative care, and assistant professor at the University of Maryland School of Nursing. Alex: And we’re delighted to welcome Joan Carpenter, who I just did the State of the Science with at the AAHPM HPNA meeting. Welcome to the GeriPal Podcast, Joan. Joan: Thanks. Bring it on.

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FDA Announces it is Ready to Act on Menthol Cigarettes, but its Success is Uncertain

FDA Law Blog

In 2009, Congress specifically exempted “tobacco or menthol” when it prohibited all other flavored cigarettes under the Family Smoking Prevention and Tobacco Control Act (TCA)’s “ Special Rule for Cigarettes.” 111-58, at 38-39 (2009). Federal actions on menthol cigarettes. 21 U.S.C. § 387 (notes to statute, § 3, ¶ 7).

IT 52
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FDA Announces it is Ready to Act on Menthol Cigarettes, but its Success is Uncertain

FDA Law Blog

In 2009, Congress specifically exempted “tobacco or menthol” when it prohibited all other flavored cigarettes under the Family Smoking Prevention and Tobacco Control Act (TCA)’s “ Special Rule for Cigarettes.” 111-58, at 38-39 (2009). Federal actions on menthol cigarettes. 21 U.S.C. § 387 (notes to statute, § 3, ¶ 7).

IT 40