15 Years Strong: Rare Disease Week’s Remarkable Journey of Support
FDA Law Blog
MARCH 7, 2024
Sasinowski — In 2009 — 15 years ago — the National Organization for Rare Disorders (NORD) announced the first U.S. NORD’s announcement followed in the footsteps of European rare disease patient organization, Eurodis , who had celebrated the first Rare Disease Day the year before. By Frank J. recognition of Rare Disease Day.
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