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15 Years Strong: Rare Disease Week’s Remarkable Journey of Support

FDA Law Blog

Sasinowski — In 2009 — 15 years ago — the National Organization for Rare Disorders (NORD) announced the first U.S. In 2009 I served as Chair of NORD and through the hard work of countless colleagues we inaugurated the first Rare Disease Day. By Frank J. recognition of Rare Disease Day.

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Episode 148: Antiracism in Medicine Series Episode 4 – Dismantling Race-Based Medicine Part 2: Clinical Perspectives

The Clinical Problem Solvers

Our guests explain how we can incorporate race-conscious medicine in clinical settings, medical education, and biomedical/epidemiological research to responsibly recognize and address the harms of racial inequality. education, income, number of previous hospitalizations) that also lead to clinical outcomes, not only race-based stratification.

Clinic 52
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RCT of PC in ED: Corita Grudzen, Fernanda Bellolio, & Tammie Quest

GeriPal

primary palliative care interventions seem to fail, whereas specialized palliative care interventions have a relatively robust track record of success. So Tammie developed something called EPIC for Emergency medicine, which is a curriculum that was one of the first ways that I think palliative care got spread in our community.

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Is Hospice Losing Its Way: A Podcast with Ira Byock and Joseph Shega

GeriPal

Usually I don’t put a lot of background on this podcast, but I got to … in November of 2022, Ava Kofman, along with ProPublica, published … well I won’t want to say great, published an article in The New Yorker that I think it was divisive in the hospice and palliative care community. Now it’s 70%.

IT 113
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Understanding the Variability in Care of Nursing Home Residents with Advanced Dementia

GeriPal

She’s a geriatric nurse practitioner specializing in palliative care, and assistant professor at the University of Maryland School of Nursing. Caroline: Again, just further educating on the front lines and families in particular, I think is really important as well as these policy implications. Joan: Thanks. Ruth: Sure.